Due to Pablo's bottomed-out blood count, he will need to complete 14 days of antibiotics starting with the first negative blood culture, which was Sunday's blood draw. Before we had an exact diagnosis on the bacteria, we were covering bases with two other antibiotics, and now we will be switching to one, ampicillin. I was told that we would get another platelet transfusion tomorrow and be on our way home with a home nurse coming over to meet us and show me how to administer IV antibiotics to Pablo so we can continue to medicate him around the clock for the remaining 11 days. Fine—I'm up for the task...no problem.
At some point when all of this information was coming my way, I just thought, 'What does Dr. Mascarenhas think of all this? Does he know everything that's happening in our little corner of 435W...and would he agree with what the attending, the fellow and the resident are saying?' I sent him a quick little email letting him know that we would like to see him and he said that he would stop by after clinic. On our way to the playroom, we saw Dr. M coming off of the elevator. He acknowledged straight away that Pablo is looking great, but that this is what we always worry about. Pablo had a bacterial infection—this is the risk! I told him that I was under the impression that as far as bacteria goes, this is a better one to have—possibly even a contaminate... "Bullshit," he cut me off. I have to admit, I was taken aback. Dr. M is incredibly gentle, yet firm with his thoughts, comments and game plans involving Pablo. This is the first time that I felt like we were taking something way too lightly. I told him that we were being sent home tomorrow, blah blah blah... "No way!" Fine, We are not interested in taking risks with our son's life—we will stay as long as we need to in order to keep P safe. That said, it still manages to change our mood and energy.
I asked Jeff to stay at the hospital tonight, so that I could be home with Grady and drive him to school in the morning. I even went out and bought fillets to cook for dinner tomorrow night for all of us... just another lesson in everything can get turned upside down in a flash of a moment. Learning how to roll with it has not been so easy for me this time. I'm sad about it. It's been another incredibly rough week on our floor and in the Wilms' Warrior world. Two sweet kids from our floor and three brave soldiers from my Wilms' email group have passed this week. Another beautiful young woman, exactly Grady's age, had to have her leg removed below the knee. That's the reality of what we're living these days.
So, thank you all for listening, caring, praying and continuing to cheer us on. And, please keep the WORLD of pediatric cancer families in your prayers.