We are HOME!
And so happy to be here. This morning, Pablo found himself unhooked around 6:30a and came over to my sleeping spot, crawled in and snuggled up for another three hours of sleeping. We both woke when Meghan, our nurse this morning, came in with his last dose of IV Zofran. Meghan has been our nurse a few times - she's awesome - particularly good at the de-accessing of Pablo's line from his port. Last night we had sweet Danica. We do love all of our nurses, but over the past year - Danica has become so close to us. We hung out in the hall last night and recapped our first night there way back in May 08. Danica was our nurse that night, but because we were a "new diagnosis" she was only coming in every once in a while to check vitals. She remembers that P and I snuggled up in the bed, that there was a lot of crying and shell shocked looks on our faces and that Jeff stayed up all night trying to find out something about this thing we'd never heard of before: Wilms' Tumor.
I guess they bring in a chemo cake and sing a little song on the last day, but I asked Danica last night not to do that... I just didn't want to make a big deal out of this - we did the very low key cupcake celebration, which was really just a way for us to show our appreciation to the remarkable, loving nurses of 4W and to mark the night. A big thing today would have felt a bit weird - especially since we anticipate being back there next week with fever and neutropenia. So, instead of the cake and the song - we had heartfelt hugs and tears. It was really something. I love that staff!
Our friend, Adam, donated platelets this morning and came up to see us. He ended up staying until we were discharged to help us with all of our belongings. It was sweet to have him there. Jeff had swung by earlier on his way to a meeting - getting to give P a big hug for his big discharge today. We rolled out of there and decided that The Mustard Seed was the perfect place for a celebratory late breakfast. Pablo ordered a ton of food, but once it got there, he barely nibbled on it. He seemed a little bit tired and anxious to get home. Knowing that the weeks of house arrest are upon us, I offered to wear a mask with P and take him to the train at Griffith Park. He declined and said, "Maybe later with Polly." Once we got home, he decided that this is exactly where he wants to be and decided to pass on the train ride altogether.
It's been quite a road. A road that we are nowhere near the end of... just past a certain mile marker... the end of chemo. This is huge and fantastic and feels so amazing and scary and a bunch of other things, but JOY and HOPE fill our hearts. Now, Pablo's counts bottom out earlier and take longer to recover than they have with any of the past treatments. He is at a high risk for infection and we have to keep him in and everything around him as clean and germ free as possible. We do not want another infection!
Continued thoughts prayers and meditations for Pablo and all of our CHLA angels and warriors, please.