Friday, October 28, 2011
Pablove Across America 2011 Day 21 Afternoon Dedication: Rena Malcolm
Meet Rena! She was diagnosed with Wilms Tumor stage IV with over 20 lung metastasis in June 2010. Rena and her mom temporarily moved from their family in Florida to Pennsylvania in order to be treated at Children's Hospital of Philadelphia. After chemo, radiation, surgery, and many complications, Rena was declared NED this past February. She has since returned to her home in Tampa, Florida and just celebrated her 5th birthday. Rena is living life, back in pre-school, and can't get enough of being home with her family, especially with her little sister and her friends.
Pablove Across America 2011 Day 21: Marisa Rosa and Tyler Blick
Tyler is 6 years old and lives in Mission Viejo, CA. He was diagnosed with ALL Leukemia on July 13, 2010. Being treated at Rady Children's Hospital in San Diego, CA, with approximately 2 years of treatment left to go. He loves Lego's and Hot Wheels, playing outside!!! His parents Steve and Jen say they would not nearly as fortunate without the humbling support from the cycling world. Steve has put together irideforthekids.com as a resource to parents of newly diagnosed children. Marisa was diagnosed with Leukemia (ALL) in September 2006 and completed treatment in December 2008. She was then diagnosed with Rhabdomyosarcoma in November 2010 and is currently in treatment. Marisa is a vibrant 9 year old who has battled cancer for more than half her life. First leukemia and now rhabdomyosarcoma. She doesn't let cancer stop her from being a normal little girl who loves to dance and sing and have fun with her friends. She's going to win this fight and show cancer, again, who's boss!
Thursday, October 27, 2011
Pablove Across America 2011 Day 20 Evening Dedication: Zachary Greene
Zachary was born on April 3, 2001 and diagnosed with Wilms Tumor on April 12, 2005. On Thanksgiving Day 2005, Zak and his parents had their last conversation. His breathing was labored and he had to go on a ventilator. Before he went under they told him they loved him and that they were proud of him. His condition worsened. Three days later he passed away never regaining consciousness. He was a unique and brilliant child, perfect in every way says his dad Steve. His life revolved around his Mom, Scooby Doo, Hot Wheels, dinosaurs, trucks, trains, mud and beach sand. He is his dad's hero and easily the best person he has ever known. Zak is missed every second that is he gone.
Pablove Across America 2011 Day 20 Afternoon Dedication: Mark Kattus and David Ochowicz
Mark is now 22 years old and just had his 4 year anniversary of his diagnosis; he was diagnosed at the age of 18 on October 9, 2007 with stage 3 Hodgkins Lymphoma. He went through 6 months of ABVD Chemo and when chemo was completed, he had 5 weeks of radiation. He is doing absolutely great and is living a very healthy lifestyle. He's a senior at UCSD where he's majoring in Astro Physics and helping to run the Rock Climbing gym on campus. He spends all of his free time climbing with his girlfriend Lauren and on occasion, he'll take his little sister Venessa with him. Venessa is 14 and Mark is her hero; she loves climbing with him. This past summer he climbed the face of Half Dome in Yosemite; he started his climb at dawn and finished it at dusk...that's fast! He is also a surfer and cyclist and just genuinely loves the outdoors. In 2008 the state of WI changed their laws and allowed 16 year olds to donate blood. David signed up immediately. It was from that blood drive that he discovered he had MDS, a rare form of bone marrow cancer and his only treatment option was to have a life threatening bone marrow transplant. Out of 11 million people on the bone marrow registry not a single one was a match. His dad and sister were not matches, and his mom Mary was only a partial match. They decided to use Mary as the donor anyway -- she was his only shot. Her to-do list before the surgeries included her yearly mammogram. It was then she discovered she had breast cancer. Finally in 2009 a donor was found. But David's fight wasn't over. He would relapse multiple times and require many risky additional transplants. Finally, earlier this year his 39th bone marrow biopsy showed No Evidence of Disease. He is now 19, a freshman at Milwaukee School of Engineering. It will be awhile before he is considering in full remission, but he is on that road.
Pablove Across America 2011 Day 20 Morning Dedication: Austin Munoz and Shaymus
Austin was diagnosed with yoke sac mixed malignant germ cell tumor on July 13, 2011. He started with two tumors, now has one. Austin is a Junior at Moorpark High School outside of LA. Mesa Verde Middle School in Moorpark is fundraising for Pablove all month. Shaymus is 10 years old and lives near Racine, WI. He has Ewing's Sarcoma and is being treated at Children's Hospital in Milwaukee, WI. Shaymus loves to draw and read books. He loves trains and he is planning on putting a train tracks throughout his whole house. Shaymus has had paintings and drawings go on sale at a gallery and is a gifted artist.
Wednesday, October 26, 2011
Pablove Across America 2011 Day 19 Evening Dedication: Chris Powers
Chris Powers was 14 years old when he lost his battle with leukemia in 1985. He was also cousin and best friend to our rider Neal, who was 12 at the time. He's the reason Neal rides, and tonight we dedicate our resting hours to him.
Pablove Across America 2011 Day 19 Afternoon Dedication: Remington Strattman and Maximus Duran
Remington was diagnosed with Stage 3 Wilms Tumor in Sept 2010 at 7 months old. He is 1 year old and from West Jordan, Utah. Remington is such a receptive and cheerful little guy. He did a great job of winning over his nurses, oncologist, and other hospital staff with his big blue eyes and beautiful smile. Remy has a strong spirit that definitely played to his advantage during treatment to beat cancer and continues to guide him in his little life. He loves to play ball, dance, swim, swing, laugh with his big sister, go camping, be silly, and hang out with his family...including the dogs! Remington is just an amazing little kid. Maximus was diagnosed with Stage 3 Rhabdomyosarcoma at 4 months old. He is two years old and from Hamilton, Ontario. Maximus is 7 months off treatment and 13 months cancer free! He is growing quickly and learning many new things like any 2 year old should!
Pablove Across America 2011 Day 19 Morning Dedication: Bella R, Jayel S, Maggie K
Bella is in treatment for her third relapse of Stage 4 recurrent Alveolar Rhabdomysarcoma. She is eight years old and from Miami, Florida. Bella loves to swim, sing, play music, build things, fish and boat. She loves Mickey Mouse and Disneyworld and her 6 year old sister Rayna, 4 dogs and two parrots (favorite parrot is Roxy!) Jayel was diagnosed with Stage 4 Wilms Tumor in May. He is two years old from Puyallup, Washington. Jayel will compete treatment at the end of November. He is doing great with minimal side effects and his hair is already growing back! Maggie was diagnosed with Thalamic Juvenile Pilocytic Astrocytoma (brain tumor in center of brain) in January 2010. She is five years old from Jamestown, North Carolina. Maggie had brain surgery to remove tumor in January 2010 and suffered a stroke during surgery. Now she has left-sided weakness and complications as a result of the stroke. A residual tumor was found and chemotherapy started earlier this year to treat it. Maggie just started kindergarten, and it is difficult to juggle school and chemotherapy and try to be a "normal" kid. Her latest scans show the tumor is stable; it actually shrunk a little bit. She still has one year of chemo and her parents have lots of hope the tumor keeps shrinking.
Tuesday, October 25, 2011
Pablove Across America 2011 Day 18 Evening Dedication: Caleb Whan
In August 2007 Caleb was complaining of arm and leg pain. Although there was no visible fracture on x-rays, Caleb was put in casts on his right arm and leg. A few days later his left leg started to hurt. Blood work revealed his parents' worst nightmare: leukemia. Caleb was diagnosed with Hypodiploid ALL, an ultra-high risk subtype with only 8 to 10 diagnoses per year and a cure rate of only 15%. Treatment included chemotherapy, full body radiation and a bone marrow transplant at Duke in November 2007. His family temporarily relocated to Durham from their home in Fort Myers, Florida for the four month process. Only 4 days after returning to Florida in March 2008 Caleb relapsed. There is NO protocol for a patient who relapses so close to transplant. He was immediately placed on hospice and only had 15 "good" days left before complications began. His last words were "yuv you" to his dad in one of the few responsive moments. On March 28, 2008 Caleb took his last breath lying next to his mother at home only 11 days after his 4th birthday. His parents Rob and Monique actively raise money for childhood cancer research and provide relocation assistance to families through Caleb's Crusade.
Pablove Across America 2011 Day 18 Morning Dedication: Quinn O'Shea and Cannon McKee
Quinn is in treatment for Retinoblastoma at Seattle Children's. The tumor has gone into the lamina cribrosa which is a mesh-like structure that occupies the hole in the sclera where the optic nerve exits the eye. The good news is it didn't go into the optic nerve. Quinn loves to swim, loves animals and his favorite toy is his Seattle Sounders soccer ball. He is a wonderful, gentle kid with a great smile and loving 7 year old big sister Maggie. Cannon McKee was diagnosed with Wilms Tumor on August 24th and being treated at Cardinal Glennon. After the first surgery to remove a tumor, his kidney and his lymph nodes a small nodule in the lung was found. He will have surgery tomorrow to remove the nodule. Ever since Cannon found out about Pablove Across America he has been riding his bike every day. His biggest disappointment about going into surgery, "I'm going to miss my bike."
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