Thursday, June 25, 2009

Afternoon Update

A week ago Pablo was hustling. He was in Lego camp four hours a day, then playing with Eli after everyone else left. We were riding bikes and running around and laughing a lot. He was playing with his growing collection of toy guns. He was singing inspired songs, making up the words off the top of his dome. He was recounting stories that he'd learned from Polly, from Jo Ann, from Grady, from me. He loves to pass along a story. No matter what the narrative is, Pablo tells it with his face pulled into a smile, hands punctuating in the air - a real raconteur.

All of this is wonderful and makes up the very kind of life we want for Pablo. And it's why it's impossibly sad and gut-wrenching seeing him lying in bed right now, with an oxygen tube wrapped round his head feeding air into his nose, doped up on Morphine, remarking that it's hard to breathe. Pablo is a person that causes those around him to gasp for air - and only cos he's always running around and having people chase him. Always because he's on a quest for fun. To see his breathing impaired - that doesn't compute. But here we are. There he is.

In terms of a medical update, there's not a lot to say. A number of things are up in the air right now, and we're going to relay only concrete information. I am happy to say that P received platelets and red blood today. And he's sleeping peacefully after a sleepless night.

Grady just arrived. When P wakes up and sees him, he's gonna be happy. He loves his big brother more than just about anything. And we love that.

25 comments:

Anonymous said...

Another bump on this crazy journey - I am sending positive vibes & so much love - xo Allison, Paul, Bruno & Thea

clare crespo said...

sending strong love your way. truckloads really.

Heather said...

Love you all.Love Pablo.Hide away in each others arms in the confines of rm 435.Yes,I have stalked you ...I have my sources.Seriously though,thinking of you nonstop today and sending you all I have.

Kisses from Miss Z and her signature hugs.(If you need one of those you know I'll be down in a flash with her)

Alan said...

The little man is in our thoughts and prayers tonight. A long way from LA, but wishing him all the best . Love to you all from The Redmonds.

Anonymous said...

We are here sending everything we can Pablo's way!
Greg

Nancy said...

Have been checking often to see how Pablo is doing. I am praying this is just a small set back for him. He is an amazing young man and your family must be so proud! Praying for blessings for you all.

Pam said...

appreciate the updates, know you all are feeling sideswiped. Pablo will rebound!
God bless,
Pam W.
Chesterfield, MO

LYNN said...

Love love love is always coming your way from all of us
xxoo Lynn Bruce Claire colin

Anonymous said...

Thanks for letting us know what's going on so we can direct our love & energy towards what you need....sending, prayers, love, healing....

Love,
The Kastners

Tiwanna said...

Really nothing to say but I'm thinking all the best thoughts, sending all the positive energy, and praying the best prayers for Pablo. Stay Strong Castelaz family your Pablove family is behind you.

Mary Jane said...

Praying in TX, LA, IN

chad said...

sending positive energy your way and hoping Pablo is back up and running around soon.

SteveAudio said...

We're thinking positive thoughts for your whole family. Nothing but positive thoughts.

Let's hope P gets his butt up soon and is back on his bike, raising hell like a 6 year old boy is supposed to.

MKPatrick said...

Sending tons for love and light right to you...Pablo, Joann, Jeff, Grady.
XO,

stephanie said...

Constant prayers and positive thoughts coming from RI. Stay strong little man, we love you!

mary katie's daughter said...

just wanted to let you all know my love and prayers are with you always everyday and everynight. I believe in positive energy and I know a lot of people including all of us are praying and sending love.

Lesley said...

Sending you Midwestern love from Chicago. Checking in now, several times a day. Always have P in our hearts & prayers. Love from Lesley & Bernie & Nathaniel & Akiva

Charlotte said...

Tons of love and support to you pillars of strength and grace. Peaceful night for Pablo.
XXOO,
Steph, Pete and crew

the mol said...

Hugs and get-well wishes for Pablo from David (and his mommy and daddy).

Tish Hearne said...

Go Pablo Go!!! Your prayer warriors are with you as you continue to be our hero; we're storming the heavens for you at this very moment!!

God Bless You,
The Hearnes

Rich Holtzman said...

Stay strong. Live Strong. Go Pablo Go

my energy is pointed at your room

Anonymous said...

We love you guys. We are all praying hard and knowing we will see you all very soon.

xx The Moffett's

Anonymous said...

So much love flowing to room 435.
Joanna & Tony

Stephanie said...

Sending LOTS of prayers your way.... been following for awhile. Will keep the good vibes coming!

Hugs from IL!

Steph

alexandra Wintersteller said...

sending you light, hope and positive energy. May the light shine through room 435 tomorrow morning and bring good news, new options, and a smiling Pablo when you wake. I am visualizing the fluid evaporating and the tumors shrinking. I am visualizing Pablo laughing, telling stories, breathing strong, and asking for some dairyless ice cream. Keep up the faith. I know you will.
.