Good Morning From Home

We are so happy to be home, for our little boy to be home. All four of us slept in our bed last night - Grady, Jo Ann, Pablo and I.

We have a house full of family: Jo Ann's parents, my brother Dean, and two locals who spent the night just to be with us - Polly and Peter. It felt wonderful to have everyone here. Made me feel safe. This is love for Pablo in the highest order.

Pablo had his best night since this phase of his life began on Wednesday. He woke frequently, sucked entire glasses of water through a straw, and would then say, in his little voice, 'I'm tired, I want to go back to sleep now.' This happened at least four times.

He has not vomited any blood since we arrived at home last night. The oxygen tubes running into his nose are making up for what his body can no longer produce. A dozen times during the night, with the palms of his hands, Pablo rubbed his nose, his face, his ears. Each time, the oxygen tube would pop out of his nose. Sometimes it'd go into his mouth and make a big hissing sound. Other times it'd slide up to his forehead. Jo Ann and I took turns being on oxygen duty. We'd close our eyes when the other was on duty. Not sure we slept exactly, but closing our eyes helped.

Overall, Pablo's breathing is becoming more labored. His face is ashen. His abdomen pistons in and out pushing his breath as it can.

Even when Pablo is asleep, Jo Ann, Grady and I talk to Pablo. Many times when we think he's fully asleep, he answers or acknowleges us. We tell Pablo we love him ('I love you too,' he responds)... we are grateful that he chose us to be his family ('You're welcome')... everything he's feeling is perfectly OK... he has been so strong and it's OK to rest...

I can't write any more right now.