Saturday, June 27, 2009

Good Morning From Home

We are so happy to be home, for our little boy to be home. All four of us slept in our bed last night - Grady, Jo Ann, Pablo and I.

We have a house full of family: Jo Ann's parents, my brother Dean, and two locals who spent the night just to be with us - Polly and Peter. It felt wonderful to have everyone here. Made me feel safe. This is love for Pablo in the highest order.

Pablo had his best night since this phase of his life began on Wednesday. He woke frequently, sucked entire glasses of water through a straw, and would then say, in his little voice, 'I'm tired, I want to go back to sleep now.' This happened at least four times.

He has not vomited any blood since we arrived at home last night. The oxygen tubes running into his nose are making up for what his body can no longer produce. A dozen times during the night, with the palms of his hands, Pablo rubbed his nose, his face, his ears. Each time, the oxygen tube would pop out of his nose. Sometimes it'd go into his mouth and make a big hissing sound. Other times it'd slide up to his forehead. Jo Ann and I took turns being on oxygen duty. We'd close our eyes when the other was on duty. Not sure we slept exactly, but closing our eyes helped.

Overall, Pablo's breathing is becoming more labored. His face is ashen. His abdomen pistons in and out pushing his breath as it can.

Even when Pablo is asleep, Jo Ann, Grady and I talk to Pablo. Many times when we think he's fully asleep, he answers or acknowleges us. We tell Pablo we love him ('I love you too,' he responds)... we are grateful that he chose us to be his family ('You're welcome')... everything he's feeling is perfectly OK... he has been so strong and it's OK to rest...

I can't write any more right now.

25 comments:

Anonymous said...

Glad to hear it was a somewhat peaceful night for Pablo. I'm happy he's home. Thank you so much for updating us. You are surrounded by love.
Love,
Stephanie

Kristen said...

Pablo has indelibly impacted the lives of my two children...having twin toddler boys can be exhausting...I will remember how special they are and how special Pablo is forever...Peace and hugs...

Nancy said...

Tear, tears and more tears I shed for your wonderful family. The great weekend you celebrated, Father's Day and Pablo's birthday keeps coming to my mind. Fold yourselves into the love pouring from your family and friends staying with you and from all of us you can't see.

Keeping the vigil and praying for peace and rest for Pablo.

Anonymous said...

The Hirway family's thoughts and love are with you all. We are thinking of you and the time Pablo is getting to spend at home. Love, love, love and strength to you.

Hugs,
Sumesh
Kanta
Priya
(and of course Hrishi and Lindsey)

MKPatrick said...

Home Sweet Home for Pablo with his glorious family and friends. He chose the best family for him. Love each other up. Love and Light, MK

Puanani said...

Praying for peace and light to fill your home and hearts. Love, love, love. Love is all there is...

Judy said...

Your family is in my continued prayers for peace and light for Pablo!
Even though I've never met your family, I have been touched by Pablo. He is an amazing child! My mantra has been "please bring peace and light to Pablo" over and over and over. Thank you for sharing your story.

Anonymous said...

My prayers are for you only...
Peace and so much love to our great teacher.
I love you Pablo.
Miles loves you too.

Carrie

Jennie & Nils said...

You all have blessed us with knowing Pablo, knowing his sweet smile and sharing this journey. P is truly a teacher of strength, faith, and love. We thank you for the updates and truly every second of the day we think of and pray for Pablo and the family. We send all of our love, strength and faith to you guys. We love you guys so much.
Jennie&Nils

adam simon said...

My heart ache's for your family.
i am so glad Pablo is at home surrounded by love.

Drea said...

There are so many of us out here thinking of you and sending love to the cocoon you have built, so many more than you can even imagine or probably hear from... we hold you, and are so thankful that you hold Pablo.

Heather said...

Not one day at a time,not one moment at a time but one very precious,NOW at a time ...Sending you love and peace and continued strength ...

Robert Friedman said...

Pablo - Jeff - Jo Ann - Grady -

I am sending all of you love and holding you in my prayers.

Robert

Tiwanna said...

So happy Pablo is home and surrounded by a house full of love. He also has the energy & love of the world outside his safe haven being freely given by the Pablove Army. Thank you for taking time from precious Pablo to keep us informed. Still sending all the best energy & love for Pablo.

Anonymous said...

I have no words to describe what I am feeling. I have no words that could possible comfort you at this time. I pray for peace for your family.

Anonymous said...

Pablo and you are all in my thoughts all the time. I am so happy you are home with him and surrounded by love.
blessings and peace for Pablo and you
love,
jody (teadreams/twitter)

Anonymous said...

Love and light. You touch my heart in such a profound way.

Steve said...

I just spent a long prayer time holding you in God's loving light. Be peaceful and know we are all with you in love.

Anonymous said...

Jo Ann, Jeff & Grady:

Your spiritual fortitude inspires me, and the bubble of love and light you are keeping Pablo in is so beautiful. I am with you in spirit, in love, in light, in prayer. I am sitting under a tree listening to the birds, seeing in my minds eye Pablo's smile and feeling in my deepest heart his spirit which is elevating everyone on this journey with you to a whole new level.

PEACE and LOVE, Sharla

Lois said...

Thank you Jeff for sharing your story. You are a wonderful writer and Dad, to be able to express everything that is happening to your family in this way is very unique and special. Pablo has touched so many people with his story because of you. One little boy and his Dad help me to make sense of the world.

What I can't make sense of is cancer, which is totally senseless and horrible and should be smashed to pieces forever and obliterated. Which the PABLOG foundation will do!!!

Charlotte said...

Happy that everything is ok. Pablo, you are so strong!

Love and Peace

Charlotte

Elana said...

Love to all of you.

Elana

clare crespo said...

So happy you're home and that your house if filled with love. There is love flying all over the world for you right now. Thank you for updating the blog. Pouring love your way, Clare James and Ruby

Tish Hearne said...

May God bless you as you hold each other closely.

Our prayers are channeled directly to the four of you in Silverlake.

Our love and prayers forever,
The Hearnes

Anonymous said...

J, J, & G,

While my faith has been tested, it is no coincidence that God brought Pablo to your family, and you to him. He is an angel who has touched ALL of our lives in unimaginable ways. Pablo will always hold a tender place in my heart. love to you all, sharona