Monday, June 27, 2011

Pablo At -2 Years


Two years ago today, Pablo lay in our bed, in our arms, hearing our words of love as we soothed him in his final hours and minutes. Since that moment, life for me has been an emotional and psychological wilderness. Most of the time, I am lost amid dense growth, not knowing which direction will lead me to, well, I wouldn't know where I'm supposed to be headed....

People ask me all sorts of questions about how I feel. I never know what to say. I feel small and shrink away as my mouth says words until the questioner in front of me looks satisfied. The fact is, I have no idea where I'd want to go if I did know the direction out of my trees. Going home, being alone—those things are epically raw and gnarly. I am grateful when I'm doing the work of The Pablove Foundation and Dangerbird, and when I'm on my bike. At those moments, I feel like I'm exactly where I need to be.


Sometimes I wonder: What was the first word I said to my son? Does he see me now, every mistake I make, every gain I make, reeling with unending sadness, faking smiles, passing time until it's my time to hear the words of people who love me and who are letting me know it's OK to go? I do believe that I will never know....until I know.


What I know is that I love Pablo. He gave my life purpose. Being his papa brought harmony to my life. All I had to do to find the rhythm that underpinned it all was to follow Pablo through the streets and playgrounds of LA, New Orleans, Milwaukee, Chicago and NYC. It was that simple. I had no idea how to be a father. He always showed me how it was supposed to be.


I miss Pablo. I will carry his spirit for the rest of my life. For as long as my lungs keep breathing. When I am done, I can assure you I will be happy to be with Pablo, in that place beyond here.... Whatever it's called.

Tuesday, February 1, 2011

Our friend Carlo Santiago, RIP


At 5:30am Monday, our friend Carlo Santiago took his final breath in a room at CHLA. He was 10 years old, and had just passed the six year anniversary of his cancer treatment.

Carlo was my friend - our friend - and I will miss him in ways words can't convey.

I will miss this little boy that I met along the path of life, of cancer life. In a world filled with obstacles, medical rejection and strife, Carlo thought only of music, jokes, words and conversation. I never saw him cave inward or resort to darkness, even though nobody would have faulted him for it.

Carlo made me smile. He blew my mind with his sharp wit, his unending vocabulary and his appetite for music. When I went up to see him the night before I left for France, he was zoning in and out - the push of the pain and the pull of the powerful medication pumping straight into his spine. When I arrived, he heard my voice and rallied: his eyes opened, he spoke a sentence in whatever voice he could gather, and he pulled his severely cracked lips into a smile.

With that wry smile on his face, Carlo spelled the name of the pain medication that was easing him through. He was wearing his Pablove tee shirt that night.

Carlo will never leave me. He cut deep into me in a way that would take others decades.

I am grateful to have met this little boy and his amazing parents, Toni and Sam.